T H E W E I G H T OF O N E©

God designed me as an artist to my own survival.
I may be a possible scientific anomaly, but I am not a statistic.

My survival, is a form of resistance as much as it is a form of God's grace.

Wrestling with Iron; The American Health Care System:

My name is Stephanie Louise, and I would like to invite you to a unique demonstration of the shape of self determination as part of infrastructure design—one rooted in creativity as a new model of “participatory science” from the lens of a Stage 4 Hematologic-Gynecologic patient,.. committed to the Advancement of Participatory Science in Integrated Care.

WRESTLING WITH IRON - THE BLOWTORCH BLUEPRINT

Since 2018, I’ve dedicated myself to auditing, interviewing, researching, and documenting systemic issues within care delivery through to initiatives of discovery. These efforts culminated in the creation of Chemo Disco©, a project that blend qualitative and quantitative data with community-powered initiatives and distribution systems This initiative, was a painful one,. The suffering...quantified, led to a series of case studies for a national specialized housing pilot programs for those within the scope of Clinical Research.

Since, 2020, I have developed Immuno Disco©—an ecosystem of micro-economies of scale—by building on the innovative successes of Chemo Disco and learning from my own challenges in creating effective sustainable partnerships. These experiences revealed critical, under-researched gaps in chronic condition management—areas that remain largely unaddressed due to the absence of specialized frameworks. This ongoing journey has deepened my understanding of the complex and often overwhelming reality of living within the paradox of chronic illness: the belief that it can be managed long-term, even as the tools to do so remain insufficiently developed.

With the serious need for innovation, we are not just treating a persistent illness; we are designing systems that nourish precision-based care at every level — private, public, and communal. Local, regional, national and global.

The Rx's and engineering blueprints are well documented: - THE DISCO SERIES MOBILE HEALING GARDEN TOUR & EXHIBITION 2026

Nourishment as therapy, through integrative culinary science
Spaces heal as much as services do, shaped by trauma-informed and community-rooted and ancestral architecture.
Specialized training and approaches for Licensed Clinical Social Workers (LCSW's) in Case Management roles.
Tailored solutions and staging options for neurodivergent individuals, involved in research/continuous surveillance, that provide a nuanced approach with nature as a key tool for Medical PTSD solutions to a better quality of life.
Improving outcomes with clinical research based specialized housing, Cancer Patients are able to create entrepreneurial endeavors to offset the constraints of income limits that both private insurance and Medicaid stipulate.

Since 2023, I have developed Chronic Comfort Care©. This initiative was born from years of "living" in the gaps of medical care and consideration—a space where nothing changed despite my consistent health and my ability to surpass benchmarks that the statistics simply didn't account for.

I realized a broader scope was needed; discovery alone was not enough. I began to see a profound commonality between Stage 4 cancer patients and those with other chronic conditions. It became clear that private equity’s influence on the medical industry has exposed the greatest vulnerability of the human condition: indifference.

Now in 2026, I have surpassed all recorded survival rates. In doing so, I have transformed the labels of "rare and unique" into the reality of being "under-researched and underserved." Recently, I integrated another chronic condition into my health management system. This has added a new layer of nuance to the complexity of this niche—the space where I don't just exist, but lead.

For those that know the difference....

Stephanie Louise

Daughter of David

Child of Mary